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Overview
- This community-university partnership has been involved in a process to identify important outcomes of SCI peer support programs and services with the goal of co-creating a SCI peer support evaluation tool.
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Related Research Citations:听
- Sweet, S. N., Shi, Z., Pastore, O., Shaw, R., Comeau, J., Gainforth H. L., McBride, C. B., Noonan, V. K., Scott, L., Flaro, H., Casemore, S., Aslam, L.b, Clarke, R., & Martin Ginis, K. A. (2024). The Spinal Cord Injury (SCI) Peer Support Evaluation Tool: The development of a tool to assess outcomes of peer support programs within SCI community-based organizations. Spinal Cord.
- Shi, Z., Michalovic, E., McKay, R., Gainforth, H. L., McBride, C. B., Clarke, T., Casemore, S., Sweet, S. N. (2023). Outcomes of spinal cord injury peer mentorship: A community-based Delphi consensus approach. Annals of Physical and Rehabilitation Medicine, 66, 101678. Doi: .
- Rocchi, M. A., Shi. Z., Shaw, R. B., McBride, C. B., & Sweet, S. N. (2022). Identifying the outcomes of participating in peer mentorship for adults living with spinal cord injury: A qualitative meta-synthesis. Psychology and Health, 37, 523-544.
- Sweet, S.N., Hennig, L., Shi, Z., Clarke, T., Flaro, H., Hawley, S., Schaefer, L., Gainforth, H.L. (2021) Outcomes of peer mentorship for people living with spinal cord injury: perspectives from members of Canadian community-based SCI organizations. Spinal Cord, 59, 1301-1308. doi: 10.1038/s41393-021-00725-2.
Highlights
- This 2023 report outlines the progress of the SCI Peer Support Community-University partnership over the last 5 years while providing avenues for next steps.
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- This video shows the development process of the evaluation tool.听
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- featured our community-university partnership听in their seasonal magazine, highlighting our latest accomplishments in developing the SCI Peer Support Evaluation Tool:听
117214-spinal-cord-injury-parascope.pdf
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- Dr. Shane Sweet gave a presentation about the SCI peer support evaluation tool in french, at the 'journ茅es qu茅b茅coises des l茅sions m茅dullaires' on September 26, 2023:听memo-qc_-_presentation_sur_levaluation_sept_26_2023.pdf
Infographic
We crafted graphs and infographics to summarize different aspects of the development of the SCI peer support evaluation tool.
Tool Development Procedures
20 Key Peer Support Outcomes
87 Peer Support Outcomes
SCI Peer Support Evaluation Tool
Evaluation Toolkit
SCI Peer Support Evaluation Tool
The following questions are intended to get your perception of the general impact of the [peer support program]. When answering these questions, please think about your whole experience with this program from your first to most recent recalled interaction with members of the [peer support program].
|
Outcome (Definition) |
Spinal cord injury peer support evaluation tool |
|
Understanding/Feeling Understood 听 (Sharing with someone who "hears me" and "gets what I am saying") |
Thinking about my experience with the [Peer Support Program], I feel _____ understood. 鈥 A lot less |
|
(Reduced) Isolation 听 (Feeling (less) lonely) |
Thinking about my experience with the [Peer Support Program], I feel _____ in my experience with my spinal cord injury/disability. 鈥 A lot less alone |
|
Normalization 听 (Having the knowledge that others have had similar experiences) |
Thinking about my experience with the [Peer Support Program], I am ______ to see that other individuals with spinal cord injury/disability have experienced similar difficulties/challenges. 鈥 Much less likely |
|
Community Engagement 听 (Integration and participation in the community) |
Thinking about my experience with the [Peer Support Program], I participate in programs, activities, or events in the community ______. 鈥 Much less often |
|
SCI Knowledge 听 (Having new information and an understanding of living with SCI) |
Thinking about my experience with the [Peer Support Program], I learned ______ about spinal cord injury from my peer supporter/mentor. 鈥 Nothing |
|
Rehab Transition Skills 听 (Learning tips and tricks for transitioning out of rehab (e.g., finding/adapting housing, finding/adapting transportation, etc.) 听 |
Thinking about my experience with the [Peer Support Program], I learned ______ from a peer supporter/mentor on how to transition to community living (for example, housing, transportation, etc). 鈥 No tips and tricks |
|
Health Skills 听 (Learning tips and tricks for maintaining your health (e.g., managing spasm, skin care, etc.) ) 听 |
Thinking about my experience with the [Peer Support Program], I learned ______ from a peer supporter/ mentor on how to maintain my health. 鈥 No tips and tricks |
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Self-care Skills 听 Learning tips and tricks for self-care (e.g., dressing/undressing, bowel/bladder care, personal grooming, etc.) |
Thinking about my experience with the [Peer Support Program], I learned ______ from a peer supporter/mentor on how to do self-care activities (for example, dressing, managing bowel/bladder, grooming...). 鈥 No tips and tricks |
|
Independence 听 (One's self-sufficiency) |
Thinking about my experience with the [Peer Support Program], I feel ______ independent. 鈥 Much less |
|
Belief in Oneself 听 (One's belief in their capacity to achieve things in the future) |
Thinking about my experience with the [Peer Support Program], I feel ______ to reach my goals in life. 鈥 Much less capable |
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Confidence 听 (Feeling self-assured about one's own qualities/capabilities) |
Thinking about my experience with the [Peer Support Program], I am ______ that I can accomplish most things I set out to do. 鈥 Much less confident |
|
Dignity 听 (A sense of worth in oneself) |
Thinking about my experience with the [Peer Support Program], my sense of worth in myself is ______. 鈥 Worse |
|
Resilience 听 (The capacity to recover from difficult situations) |
Thinking about my experience with the [Peer Support Program], I am ______ to bounce back quickly from difficulties or setbacks. 鈥 Much less likely |
|
Coping 听 (Having strategies to minimize or tolerate stress) |
Thinking about my experience with the [Peer Support Program], I am ______ to cope with the stresses/demands of my spinal cord injury/disability. 鈥 Much less able |
|
Positive Attitude 听 (A positive way of thinking or feeling about life) |
Thinking about my experience with the [Peer Support Program], I am ______ to look at things in a positive way. 鈥 Much less likely |
|
Perseverance 听 (One's ability to do something despite facing difficulties) |
Thinking about my experience with the [Peer Support Program], I am ______ to keep going when problems arise. 鈥 Much less capable |
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Hope 听 (One's expectations that good things will happen) |
Thinking about my experience with the [Peer Support Program], I feel ______ hopeful. 鈥 Much less |
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Mental Health 听 (Having feelings about one's psychological state) |
Thinking about my experience with the [Peer Support Program], my mental health is ______. 鈥 Worse |
|
Happiness 听 (Feeling pleasure and contentment with life) |
Thinking about my experience with the [Peer Support Program], I feel ______ happy. 鈥 Much less |
|
Quality of life 听 (One's standard of health, comfort, happiness, and overall wellness) |
Thinking about my experience with the [Peer Support Program], my quality of life is ______. 鈥 Worse |
Note: A higher rating on an item indicates more positive evaluation of their peer support experience on the outcome.
Glossary of Terms
- SCI peer support: a peer interaction that aims to help individuals who share similar lived experiences adapt and/or thrive.
- SCI peer mentorship: a purposeful and unidirectional peer support relationship, where a mentor shares their lived experience with a mentee.
- Peer supporter/mentor: someone who acts as a source of knowledge, guidance, and/or wisdom to a peer mentee with SCI.
- Peer mentee: an individual with a SCI who receives knowledge, guidance and/or wisdom from a peer supporter with SCI.
- Outcome: something that follows as a result or consequence of SCI peer support.
- [Peer Support Program]: various types of programs, service, or initiatives provided by community-based organizations to facilitate peer support among individuals with SCI. The term 鈥淸Peer Support Program]鈥 in bracket can be replaced by the specific name of an organization鈥檚 program.
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Please see the link below to access the Word Version of the SCI Peer Support Evaluation Tool:
Evaluation Toolkit
The SCI Peer Support Evaluation Toolkit and its example is a document aimed to help users, such as organizations or peer support program leaders, to implement the Evaluation Tool/Survey within their peer support program or service. This Toolkit will take you through the process of creating and administering a personalized SCI Peer Support survey comprised of SCI peer support outcomes identified as important by Canadian SCI community organizations.
SCI Peer Support Evaluation Toolkit
